Cen Clear offers many services to children and parents some of the programs they offer are
-Early Headstart
-Early Headstart/Child Welfare Services
-Head Start
-Head Start Child care Partnership
-Head Start School Collaboration Project
-Family Centers
-Full Day/ Full Year Headstart
-Parent Child Home Program
-Pre-K-Counts
-Step by Step (Early Intervention)
and many more if you are interested in getting more information and see other programs they offer you can check them out at http://www.cenclear.org/
Thursday, October 7, 2010
Monday, October 4, 2010
Team Work
I was dissapointed at the appointment because I thought for sure she was going to like this and wear her cochlear but it was just a fight everyday to get her to wear it. I do remember this one day though we were working with her so hard and finally she let it on for a few minutes and her older sister looks at her and says "Im your sister Haley" it was the cutest thing ever and brought tears to my eyes because my daughet didn't know what anyones voices ever sounded like. But with the help of the early intervention program and the Hearing Therapist and Speech Language Pathologist we were all going to work together as a team to get my daughter to wear this device so she could be on her way to hearing.
Thursday, September 30, 2010
Its time to hear
The wait was over, we were headed back to pittsburgh for my daughter to get her implant turned on. What an exciting day for us it was. I remember the whole family was there with cameras and video cameras just waiting to see this special moment. The time came to turn it on and guess what they had it to loud and it scared her so she didn't want to wear it. What a day! They didn't force her to but I was dissapoited I was thinking to myself. Did I make a mistake? What am I gonna do now?
Friday, September 17, 2010
How is this going to work?
If you are curious as to how this all is going to work. I have posted a video to help you understand.
Thursday, September 16, 2010
Facts
Many people hear a lot of different things about a cochlear implant so I have provided you with some facts about the implants that may answer some of your questions or, you could check the website out where I got this information from because they have a lot more information on there.
http://www.hearingpocket.com/myths.shtml
Occasionally, you do come across someone who thinks they know something or two about a cochlear implant. However, after speaking with them for a few moments, you may actually begin to wish that they would be of the former group. Their limited knowledge and understanding of what a cochlear implant is and how it works lends to some very basic misunderstandings that gives rise to the myths and legends that are so widespread.
Cochlear implants have had more than their fair share of myths and misconceptions since they first arrived. The source of these myths is not clear. Perhaps they are spread by those who oppose the use of cochlear implants, or they are the figment of someone’s imagination. Either way, the cochlear implant’s reputation will suffer as long as these beliefs are still widely accepted.
Here is a list of the 5 most common myths that we've encountered. It is important that cochlear implant users be knowledgeable enough to dispel these myths by properly educating those that are willing to learn the truth.
Myth # 1:"Cochlear Implants are attached to the brain."
Fact: Cochlear Implants are implanted in the inner ear (a.k.a. the cochlea) and avoid the area of the brain entirely.
Many people are led to believe that cochlear implant is a very sensitive and major surgery since it involves operating on the brain. There is also the fear that the internal component can go bad and “damage the brain” that it sits upon. All this is nonsense. The cochlear implant doesn’t go near the brain at all. The internal electrode array gets inserted into the inner ear canal or cochlea, and the receiver is placed right under the skin of the skull. The brain is not touched by any component of the cochlear implant, nor is it exposed at all during surgery.
Myth # 2:"Children with cochlear implants cannot learn to sing."
Fact: Hearing impaired children can learn music just as well as their hearing peers.
Music and song are very difficult areas for a hearing impaired person, as the sensitivities to the different keys and notes are necessary to both learn and appreciate its fine points. However, with the hard work and diligence that hearing impaired children are used to putting in, they too can be successful in this regard. Let’s not forget, Ludwig von Beethoven, the world’s most renowned musician, was profoundly deaf even as he produced widely acclaimed music!
Myth # 3:"Cochlear Implants are a cure for deafness."
Fact: Cochlear Implants make it possible for a deaf person to integrate with hearing society.
A very common misconception is that after receiving a cochlear implant, the child will become an ordinary hearing person. The fact is, auditory and language skills are only acquired with lots of hard work and training. The cochlear implant does not come close to be a replacement for natural hearing. And should the great success of the cochlear implant cause you to forget your child is deaf, there is always swimming time and bath time to remind you.
Myth # 4: "Cochlear implant surgery will preclude the opportunity to benefit from future technology."
Fact: Cochlear implants are the best available technology to help a deaf child learn sound for the foreseeable future.
Much hype is generated about the possibility of hair-cell regeneration, and that the insertion of the electrode array into the cochlea will kill off any remaining hair cells that can be regenerated in the future. As many years have gone by without any “new technology” available, it is safe to assume that cochlear implants are the best bet for now. Any new technology, even should it become available, will require rigorous and lengthy safety testing before it is approved for use in children. During that time, your child would have been trained to speak and hear just like other kids.
Myth # 5: "Cochlear Implants are too experimental."
Fact: Cochlear implants have a well-established success record.
The concept that an implant can cause a deaf person to hear does sound like science fiction, leading people to believe that cochlear implants are experimental. Actually, cochlear implants have been approved by the FDA for use in children since 1990, and they have been used in tens of thousands of children around the world with very positive results. Before their approval, they underwent very rigorous testing, and their performance is constantly studied by experts to see how well the users are benefiting from them.
According to recent studies, only 15% of the deaf population in the United States choose to receive cochlear implants. This very small percentage may be as a result of people having wrong perceptions of them.
It is highly likely that a cochlear implant candidate will first discuss the implant with an actual CI user or parent before agreeing to be implanted. By being able to properly respond and inform the candidate, you will be more likely to succeed in convincing the candidate to undergo implantation, and thereby increase their quality of life
http://www.hearingpocket.com/myths.shtml
Cochlear Implant Myths
Get to Know These Widely Held Beliefs So You Can Inform People of the True Facts
As parents of children with cochlear implants, we are somewhat used to the interest that our child’s cochlear implant generates. People “politely” stare at the coils on the head, some wonder silently, and others, when you inform them that it’s called a cochlear implant, respond with a blank face of total ignorance.Occasionally, you do come across someone who thinks they know something or two about a cochlear implant. However, after speaking with them for a few moments, you may actually begin to wish that they would be of the former group. Their limited knowledge and understanding of what a cochlear implant is and how it works lends to some very basic misunderstandings that gives rise to the myths and legends that are so widespread.
Cochlear implants have had more than their fair share of myths and misconceptions since they first arrived. The source of these myths is not clear. Perhaps they are spread by those who oppose the use of cochlear implants, or they are the figment of someone’s imagination. Either way, the cochlear implant’s reputation will suffer as long as these beliefs are still widely accepted.
Here is a list of the 5 most common myths that we've encountered. It is important that cochlear implant users be knowledgeable enough to dispel these myths by properly educating those that are willing to learn the truth.
Myth # 1:"Cochlear Implants are attached to the brain."
Fact: Cochlear Implants are implanted in the inner ear (a.k.a. the cochlea) and avoid the area of the brain entirely.
Many people are led to believe that cochlear implant is a very sensitive and major surgery since it involves operating on the brain. There is also the fear that the internal component can go bad and “damage the brain” that it sits upon. All this is nonsense. The cochlear implant doesn’t go near the brain at all. The internal electrode array gets inserted into the inner ear canal or cochlea, and the receiver is placed right under the skin of the skull. The brain is not touched by any component of the cochlear implant, nor is it exposed at all during surgery.
Myth # 2:"Children with cochlear implants cannot learn to sing."
Fact: Hearing impaired children can learn music just as well as their hearing peers.
Music and song are very difficult areas for a hearing impaired person, as the sensitivities to the different keys and notes are necessary to both learn and appreciate its fine points. However, with the hard work and diligence that hearing impaired children are used to putting in, they too can be successful in this regard. Let’s not forget, Ludwig von Beethoven, the world’s most renowned musician, was profoundly deaf even as he produced widely acclaimed music!
Myth # 3:"Cochlear Implants are a cure for deafness."
Fact: Cochlear Implants make it possible for a deaf person to integrate with hearing society.
A very common misconception is that after receiving a cochlear implant, the child will become an ordinary hearing person. The fact is, auditory and language skills are only acquired with lots of hard work and training. The cochlear implant does not come close to be a replacement for natural hearing. And should the great success of the cochlear implant cause you to forget your child is deaf, there is always swimming time and bath time to remind you.
Myth # 4: "Cochlear implant surgery will preclude the opportunity to benefit from future technology."
Fact: Cochlear implants are the best available technology to help a deaf child learn sound for the foreseeable future.
Much hype is generated about the possibility of hair-cell regeneration, and that the insertion of the electrode array into the cochlea will kill off any remaining hair cells that can be regenerated in the future. As many years have gone by without any “new technology” available, it is safe to assume that cochlear implants are the best bet for now. Any new technology, even should it become available, will require rigorous and lengthy safety testing before it is approved for use in children. During that time, your child would have been trained to speak and hear just like other kids.
Myth # 5: "Cochlear Implants are too experimental."
Fact: Cochlear implants have a well-established success record.
The concept that an implant can cause a deaf person to hear does sound like science fiction, leading people to believe that cochlear implants are experimental. Actually, cochlear implants have been approved by the FDA for use in children since 1990, and they have been used in tens of thousands of children around the world with very positive results. Before their approval, they underwent very rigorous testing, and their performance is constantly studied by experts to see how well the users are benefiting from them.
According to recent studies, only 15% of the deaf population in the United States choose to receive cochlear implants. This very small percentage may be as a result of people having wrong perceptions of them.
It is highly likely that a cochlear implant candidate will first discuss the implant with an actual CI user or parent before agreeing to be implanted. By being able to properly respond and inform the candidate, you will be more likely to succeed in convincing the candidate to undergo implantation, and thereby increase their quality of life
Wednesday, September 15, 2010
Surgery
We had gotten everything ready for the surgery because the it was quite the drive for us. She was getting the surgery done at Childrens hospital in Pittsburgh http://www.chp.edu/CHP/Home. I chose that hospital because they are very well known for what they do and I trusted them with my child. So we drove the three hours to get there and settled into our hotel room for the night and I didn't sleep much that night because I was scared. The next day came and we had to get up early and got to the hospital and what seemed like it took forever was the preparation for the surgery. It felt like an eternity to me. I remember as the nurse came out and took her from me my daughter was in tears going back to the operating room and I was trying not to let her see me cry but, after she went back I just broke down. My daughter was in surgery for about four hours and I didnt quite know exactly what to expect when she was done. I got the call that she was done and I was never so glad to see her. When I had first seen her she had a bandage on her head and I expected it to be a lot worse than it was but the surgeon did a really nice job and today that scar is barely visible behind her ear. We headed up to the room because she had to stay overnight for observation and then the next day she would be free to go home. The wait for this device to be turned on is about six weeks so she only had six more weeks of silence to go and the excitement was growing. What will happen now?Thursday, September 9, 2010
Getting there
So as time went on I finally got some great news. My daughters audiologist had mentioned a cochlear implant and I asked her what that was. It is a device that is medically implanted behind the childs ear and has an outerpiece which just bypasses the damaged parts of her ear and sends sound waves direcly to her brain. I was amazed. I couldn't wait to get more information on this. I did so much research on it that I was going back over research that I had already gone over. By this time I knew that this is what I wanted for my daughter. But I was faced with a many questions like. If I did this for her would she be mad at me when she got older. What if she gets really sick? What if it doesnt work? What if she doesn't like it when she figures out what it is. But I took the steps and decided to do all the necessary steps in order for her to get one. I wanted my daughter to hear like everyone else. I didn't want her to feel left out in the hearing world. So we got the news she was going to get the surgery.
Subscribe to:
Posts (Atom)